“Brutally Honest Bev”
Get used to this, as this is what you get when you visit this section!

I say this now before you continue, if anyone thinks that MY opinions will offend them, then do NOT read things that I write and place in this area of this web site as they express MY opinion only!
 
 

How do WE accomplish the awesome task that lies ahead of us?

WHO are the "WE"? 

WHO leads and WHO follows?

I found one in the issues of some ARD support groups have elected to treat each other via their Internet dealings with one another, for a couple of them, and it was not condusive to the cause of ARD in a positive way. Non the less, it caused me to look at how we, the victims of ARD, relate to one another as we walk this new pathway since finding one another after so many years of walking that path alone. I will share my opinions and thoughts on what I see happening in some relationships between ARD sufferers themselves, as sharing this is a therapeutic way for me to get rid of things that I am saddened by. This is for me, and if anyone else elects to read my thoughts and opinions, so be it, but again I reinterate, that these are my thoughts and opinions reflected in all that I share in this web site and not ever do I expect anyone to share my views on life as I see it.

When we see support groups take  "sides" and not wiling to overcome issues to allow themslevs to participate in mutual support for one cause, the cuase they state they support!  This behavior only serves to put a wedge in what could be a time when we, the victims of ARD, are trying to rise above behaviors we have been exposed to for many years and that contributed to our suffering!  For years many within the medical arena were secretive, insulting, manipulating, and controlling and in far too many cases, deliberately withholding the truth of ARD as being the reasons for our suffering. These actions not only compounded our suffering of physical wounds, they bashed our very essence of being so that we were not able to cope with ARD issues let alone do anything to effectively help ourselves. To add insult to injury, they successfully kept us apart and alone in all that suffering.  It cuts me deep when I think of my days of suffering that way, so sad and so alone. 

It is for these memories that I have the drive to reach out and touch the lives of other victims of ARD, to right wrongs, to seek justice for injustices done to us and to change what I can change and by me pursuing these avenues, I heal myself from things the things I cannot change that happened to me.   I will never stop my quest to do everything in my power that my heart tells me must to be done so that my fellow ARD sufferers might be spared from suffering the same indignities and trauma my walk with ARD was for me! 

There is good news as well, as we did discover that there were in fact, MANY, within the medical/research community who had been and continue to, work to find resolutions for this most insidious affliction, the sad news was that they were not and still do not work in cooperation with one another, thus bottle-necking progress and possible cures!  Lots of boats in the water, but to many rowing in different directions with some rowing with only one paddle while others make considerable progress, only to be caught up in a whirlpool called "government!" 

All people have different perceptions of things they experience, and this is my take on these issues based on things I have personally experienced in my walk with ARD, nothing more, and nothing less.

We, the victims of ARD, have our work cut out for us if we intend to institute changes and secure ways in which to help ourselves. Now that we are aware that these issues exist and how they directly impact our lives each and every day, how can we not do something about it? In my opinion, there is only one answer to that questions... ALL of us must try to do something about it, together!

My heart says that we accomplish this task by all victims of ARD coming together with the
 joining of minds, hearts and souls to become ONE voice for all!

My heart says that that this one voice be raised the from every corner of the world, in joyful noise filled with a strong presence of fierce determination to be heard and understood!

 My heart says that "WE" the victims of ARD, present and future, and with being the voice of those past ARD sufferers, WE stand together to make these changes happen!

My heart says that "WE" the victims of ARD, can all get into OUR boats, row with all oars in the water at the same time and in the same direction, not allowing anyone or anything to stand in our way of accomplishing goals we set and pursue! 

ALL victims of ARD must work together if we are to the goals within 
        our hearts realized, and those goals differ little from one to another
        of us, then ALL victims of ARD must be respected! 

ALL victims of ARD must be listened to; ALL victims of ARD must be heard, 
ALL victims of ARD must be free to express and pursue ALL avenues without
        being dictated to, controlled, manipulated, suppressed, chastised and 
        treated in  any other way then with sincere "grandma taught respect!" 
ALL victims of ARD must listen to others with compassion, understanding  and soft heart,  ALL victims of ARD must never judge or condemn a fellow ARD sufferer, 
ALL victims of ARD must be sensitive to the needs of others and not reach out to
        one another ARD victim with malice towards them.
ALL victims of ARD must be free to be just as they are when among 
        their fellow ARD victims and not fear persecution from their own
        least we, as fellow victims, be judged by our peers in the world of ARD! 

have know persecution in thier lives for too long, it is time
that we, those same victims, do our best to heal wounds by responding to each other
with compassion, understanding, patience and love, sprinkled with kindness and sincerity. 
To be understood and effective in healing victims of ARD, those qualities must be shared by 
those who have walked this nightmare, as through that nightmare, we also grew to be wise 
in the ways that our pain and suffering can be healed, no others can accomplish that healing but those who have suffered it themselves.