Better Treatment for Fibroids?
Carla Dionne Takes Your Questions
Below is the report from 20/20
Friday, August 27, 2004
on
20/20 (ABC Network)
Conflicting Opinions
Is a Turf War Compromising Women's Medical Care?
Aug. 27, 2004 Elyse Fine's gynecologist
told her she needed a hysterectomy to treat a uterine fibroid that was
causing heavy bleeding. But Fine, a 44-year-old mother of two, did not
agree.
Every minute of every day in this country a woman has her uterus removed
in a hysterectomy. Most of the surgeries are done on women under age 50,
and the vast majority are performed to treat fibroids, benign tumors that
develop in the uterus. Fibroids occur in as many as 80 percent of women.
While the growths can cause pain and heavy bleeding, most do not need treatment.
Non-Surgical Option
Fine said she told her doctor, "I'm pretty partial to my body parts
and I'd like to keep them. I have two children. I'm not having any more,
but I really didn't want any more surgery."
Some experts say alternative treatments are better suited to treating
most uterine fibroids. They say as many as 75 percent of the 600,000 hysterectomies
performed annually in the United States for various conditions may be unnecessary.
Carla Dionne, who founded the National Uterine Fibroids Foundation after
undergoing the procedure herself, says women need to hear more about their
options. "I don't think any woman should have to undergo a hysterectomy
when there are other viable options for uterine fibroids. And I think it's
ridiculous that the other options aren't being made available to women
across the country," Dionne said.
One option is fibroid embolization a nonsurgical procedure that destroys
fibroids by cutting off their blood supply. The procedure is typically
performed by a radiologist.
Caught in a Turf War
But Dionne says most women aren't going to hear about it from their
gynecologist. "There's a huge war between gynecologists and interventional
radiologists," she said. "It has scared the dickens out of women so they
wouldn't undergo fibroid embolization. Oh, the horror stories women have
been told by their gynecologists about the procedure. It's ridiculous."
Hysterectomies are a big moneymaker for doctors and hospitals.
A gynecologist loses several thousand dollars each time a fibroid patient
gets treated with embolization instead of surgery. It has fueled an ongoing
battle between specialists and some say Cheryl King got caught in the
middle.
King, a 44-year-old wife and mother, teacher, and guidance counselor
in New Jersey suffered from heavy menstrual bleeding. By the autumn of
2001 it had gotten much worse.
According to her husband, Tom, her gynecologist said the excessive bleeding
was caused by a very large fibroid tumor that needed to be removed. His
recommendation, Tom King says, was to remove the tumor by performing a
hysterectomy.
Cheryl had researched fibroid embolization as an alternative to hysterectomy
and told her gynecologist she believed it was the right choice for her.
But her doctor disagreed. He told her the procedure wouldn't work in her
case, her husband says, and that she was going to end up having a hysterectomy
later on anyway, even if she chose fibroid embolization for her current
tumor.
Still, Cheryl wanted to learn more about the embolization procedure.
She spoke with family members in Atlanta who knew of a local interventional
radiologist who did fibroid embolizations. The Kings made an appointment
to see him, and the radiologist felt fibroid embolization would be an appropriate
treatment for Cheryl.
The teacher scheduled the procedure for a few months later to coincide
with her spring break, but she never made it back to Atlanta.
She started bleeding heavily and went back to her gynecologist. He gave
her medication to help control the bleeding. But one day she was too sick
to go to work.
Tom King recalls that morning in painful detail. "She said, 'I'm really
in pain. I think I need to go to the hospital.' So I called 911," he said.
As he gathered clothes to bring to the hospital, his son called out to
him.
"When I got downstairs," he said, "she was passed out on the floor.
And I knelt beside her. They worked on her a couple of hours. But there
was nothing they could do." Cheryl King died of complications from hemorrhaging.
Dionne believes Cheryl King's case was an unnecessary tragedy. "The
saddest part to me in all of that is Cheryl lived about a mile and a half
from the closest interventional radiologist who could have and would have
performed the procedure," she said.
Dr. Grant Price, who has been doing fibroid embolizations at New Jersey's
Somerset Hospital near the Kings' home since the late 1990s, said embolization
was already an established procedure at the time of Cheryl King's death.
"We had been doing them at that point for a number of years. Certainly,
we weren't hiding. We were readily available. Anybody who typed in fibroids
and Somerset County into Google could have come up with me," he said.
Dionne finds King's story tragic and says, "She should not have died."
Look for a Cooperative Setting
"One of the best settings to be treated for fibroids is at a center
where there is cooperation between gynecologic surgeons and interventional
radiologists," said Dr. Shaun Biggers, an assistant professor of obstetrics
and gynecology at Cornell University Medical College.
Biggers works closely with Dr. Neil Khilnani, an interventional radiologist
at Cornell to create a new team approach to treating fibroids.
Lucky for Elyse Fine, a friend has referred her to Khilnani. "We've
learned who is a good candidate and who is not a good candidate
And we
find that 90 percent of patients with significant symptoms do improve after
the embolization," said Khilnani.
Much has been learned since 1995, when the first fibroid embolization
was performed
That bodes well for Fine the location of her fibroid and the fact
her chief complaint is heavy bleeding make embolization a good choice for
her.
She was mildly sedated for the procedure. Tiny pellets were injected
into a catheter inserted near the groin that is guided up to the uterine
arteries. The pellets stop the flow of blood to the fibroid tumors, causing
them to shrink and die. The pellets are made out of a plastic similar to
contact lenses and stay in the artery permanently.
The outcome statistics for uterine fibroid embolization are impressive
more than 90 percent symptom relief, with complications in only 2 percent
to 5 percent of cases. Radiologists now routinely avoid the arteries near
the cervix and vagina which seems to minimize the risk of sexual dysfunction.
Another advance has been the use of pain medication for the severe cramping
that sometimes starts during the procedure. It can often last several days
but can be well controlled with medication.
Fine had the procedure on a Thursday and was back to work on Monday.
Two weeks after her surgery she told 20/20 she was feeling fine. "Other
than a little bit of pain the first weekend, I was back to work on Monday.
Back running on Thursday," she said.
Dionne says Fine's experience is encouraging, but hopes the medical
community will move quickly to make her experience the rule, rather than
the exception.
"While that's one example at Cornell, I would love to see more examples
of that happening. I can't help but think it's a win-win situation for
everybody."
For more information on uterine fibroid embolization visit the
National Uterine Fibroids Foundation Web site at http://www.nuff.org
or call the group toll free at 1-800-874-7247.
