Children: 2 Birth: 9-21-49 MRS. CYNTHIA SHRUHAN 53 YEARS, WE HAVE LIVED IN LAS VEGAS NEVADA
FOR 11 YEARS, IM A NATIVE SOUTHERN CALIFORNIA GIRL, WE HAVE TWO KIDS, DAUGHTER
IS 33, LIVES IN IDAHO WITH OUR TWO GRANDDAUGHTERS, AND NEW GRANDSON DUE
ANY DAY, OUR KIDS ARE BY A PREVIOUS MARRIAGE OF MINE, BUT DON'T TELL OUR
KIDS THIS, HA HA. AS THEY LOVE MY HUBBY, BOBBY AS THERE FATHER, GOD KNOWS
THIS MAN IS TRULY A SAINT TO ME, WE HAVE BEEN MARRIED FOR 21 YEARS, STARTED
INFERTILITY IMMEDIATELY, I WANTED ANOTHER BABY WITH BOBBY, THIS WAS NOT
MEANT TO BE. IN 1981 ALL OF THIS STARTED. MY FIRST ABDOMEN SURGERY WAS
IN 1981, THAT WAS ALSO MY FIRST INSEMINATION, AND WITHIN TWO WEEKS, I DEVELOPED
A HUGE MASS ON MY RIGHT OVARY, AND TUBE, THE SIZE OF A GRAPEFRUIT, EMERGENCY
SURGERY TO REMOVE THAT, ALONG WITH MY TUBE, AND OVARY..2ND INSEMINATION
DID THE EXACT SAME THING, THIS TIME MY LEFT SIDE, THIS CREATED ANOTHER
EMERGENCY SURGERY TO REMOVE MY LEFT OVARY, AND TUBE. WE WERE LEFT WITH
ONE MORE TRY, THE DOC'S WANTED! TO PLACE IT DIRECTLY INTO MY UTERUS, AGAIN
I DEVELOPED A HUGE MASS, NOW ATTACHED TO THE UTERUS, BEINGS THAT WAS ALL
THAT WAS LEFT..3RD SURGERY IN 1983 EMERGENCY, TO REMOVE MY ENTIRE FEMALE
ORGANS, WITH IN TWO MONTHS, I FELT PAIN OFF, AND ON AROUND MY RIGHT SIDE
AGAIN, OF COURSE BOBBY, AND I NEVER DID HAVE OUR OWN KIDS, BUT AS BOBBY
HAS ALWAYS SAID, HEY..WE HAVE 2 TO RAISE NOW, THAT SHOULD KEEP US REAL
BUSY. THE YEARS PASSED, AND THE PAIN INCREASED, BUT WOULD GO AWAY. LITTLE
DID I KNOW WHAT WAS GROWING INSIDE OF ME ALL OVER MY G.I. TRACK. IN 1994
DETECTION STARTED HERE. BOTH MY WRIST FLARED UP, I COULD NOT EVEN USE MY
HANDS TO BRUSH MY TEETH, SO PAINFUL, DOC SAID CARPEL TUNNEL, HE ALSO WANTED
SURGERY ON BOTH ASAP. OH NO, SECOND OPINION, NEW MD..SAID NO SURGERY ON
YOUR WRIST YET, DID A COMPLETE EXAM, HE WAS EXAMINING MY LOWER GI TRACK,
AND I JUMPED OFF THAT TABLE LIKE SOMEBODY HAD STABBED ME. MY MD, JUST JUMPED
BACK, AND SAID, WHAT IS THIS, YOU HAVE NO FEMALE ORGANS, WHY SO MUCH! H
PAIN, WELL GEE, ITS BEEN GOING ON FOR YEARS, BUT AGAIN IT WAS OFF, AND
ON, DON'T EVER IGNORE PAIN, EVER, AS THIS HAS LEAD ME TO THE PLACE IM AT
NOW, BASICALLY BEDRIDDEN ALL THE TIME, THE DOC DID A EXAM OF THE RECTUM
TO FIND A LOT OF BLOOD, OFF TO THE GI DOC, AND ALL THOSE WONDERFUL TEST
THEY DO..UCK..ANYWAYS MY GI DOC FOUND UNIVERSAL ULCERATIVE COLITIS, WHICH
MEANS THE ENTIRE LARGE BOWEL WAS INVOLVED, THIS IS RARE, THIS HAS ALSO
BEEN WITH ME MY ENTIRE LIFE, WITH UNIVERSAL COLITIS, YOUR ODDS OF CANCER
WILL INCREASE, I WAS ON STEROIDS FOR TWO YEARS, I BLEW UP TO 132 LBS, PREDNISONE
DID NOT WORK ON COLITIS, THE MEDS THAT DO THE BEST, ARE THE SULPHA MEDS,
IM ALLERGIC TO THEM ALL, AND ALMOST DIED THE LAST TIME I TOOK ONE OF THE
SULPHA MEDS FOR A BLADDER INFECTION YEARS AGO, MY GI DOC, TRIED EVERY MEDICATION
THAT WAS OUT THERE, FOR THIS DISEASE, NOTHING WOULD TOUCH IT, HE FINALLY
DECIDED TO TRY CHEMO THERAPY IN PILL FORM, AND MY GOSH THIS WORKED, I TOOK
CHEMO VIA PILLS DAILY, MY HAIR FEEL OUT, TONS OF SIDE EFFECTS FROM CHEMO,
BUT IT TRULY GOT THE! COLITIS UNDER CONTROL, BUT THIS RIGHT SIDED PAIN
WAS SO HORRID BY THIS TIME, I TOLD MY GI, AND MY MD DOC, THIS IS NOT RIGHT,
SOMETHING VERY WRONG IS GOING ON IN THERE, THEY LISTENED, SAID NOTHING,
THIS WENT ON, AND ON. I ENDED UP IN ER SO MANY TIMES, THEY ADMITTED ME
SEVERAL TIMES, TO RUN THE SAME TEST, AND NOT ONE TEST SHOWED ANY BLOCKAGE,
OR AIR POCKETS, NOTHING. SO THIS PAIN JUST GETS WORSE, AND WORSE, I HAVE
BEEN SEEING A PHD SINCE I MOVED TO VEGAS, FOR OTHER REASONS, BUT NOW THAT
I LOOK BACK, I THANK GOD SHE HAS BEEN THERE WITH ME THROUGH OUT ALL OF
THIS, AND I STILL SEE HER MONTHLY, I FEEL VERY STRONGLY THAT WITH CHRONIC
PAIN, OR A HORRID DISEASE, A PHD CAN HELP MORE THAN ANYTHING...I LOVE MY
PHD DOC, SO MUCH. SHE HAS BEEN A BLESSING IN MY LIFE. BECAUSE IT TOOK SO
LONG TO GET THE DISEASE UNDER CONTROL, THIS ADHESIONS THING WAS GROWING
BY THE SECONDS. THE PAIN WAS NOW RUNNING AROUND TO MY BACK, AND UP MY RIGHT
SIDE, PULLING, BURNING, SO MANY DIFFERENT TYPES OF PAIN, I TOLD! D MY DOCTORS
SO MANY TIMES, I ENDED UP IN THE HOSPITAL WITH D! DEHYDRATION, AND MALNUTRITION
TWO TIMES, I ALMOST DIED ONE OF THE TIMES, I WAS SO MALNOURISHED, MY MD
DID NOT KNOW IF I WOULD MAKE IT, AT THIS TIME MY WEIGHT WAS 69 LBS, I HAD
LOST ALL THAT WEIGHT FROM THE STEROIDS, BUT I STILL LOOKED 9 MONTHS PREGNANT.
I CALLED IT MY BABY. I WAS ALSO PLACED ON TPN.. WHICH IS FEEDING ONE BY
A TUBE, MINE WAS IN MY MAIN ARTERY IN MY UPPER ARM, THIS WORKED GREAT,
AND I SHOULD OF BEEN ABLE TO KEEP IT IN A LONG TIME, BUT MY LUCK, MY LIVER
WAS GETTING WAY TO MUCH OF A FAT BUILD UP, SO THEY HAD
LOVE TO YOU ALL, AND A NEW FRIEND..
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Angel9oh7 Greetings
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Story shared by: Ann Marie Fritz MY STORY AS A MOTHER FOR HER DAUGHTER,
MY STORY OF HAVING A DAUGHTER WHO HAS ARD - SUCH A PITIFUL SITE TO SEE. I WAS IN DENIAL ABOUT MY DAUGHTER'S ILLNESS FOR A VERY LONG TIME. I SAID NO IT CAN'T BE MY DAUGHTER, SHE HAS BEEN A GOOD GIRL ALL HER LIFE, ALWAYS THERE TO HELP ME THRU MY SICKNESS, AND NOW I WANT TO BE WITH HER AS SHE STRUGGLES THRU HERS. CINDY HAS HAD A LOT OF SURGERY, I'M THERE TO HELP TAKE CARE OF HER. IN OCT 1999 I MOVED WITH HER, AND I REALIZED JUST HOW SICK SHE REALLY WAS. DENIAL WAS GONE, AND I KNEW I WANTED TO TAKE CARE OF HER MORE THAN EVER BEFORE. YOU LOOK AT HER OH-SO-PRETTY, AND YOU SEE HER IN SO MUCH PAIN. LET ME TELL EVERY ONE IT'S VERY HARD TO COPE WITH SOMETIMES. HER DOCTORS JUST DON'T UNDERSTAND HER ILLNESS. THEY TRY AND TELL HER SOME OF IT IS IN HER MIND. CINDY HAS BEEN THRU SO MUCH, THIS CAN'T BE HAPPENING TO CINDY.. WELL IT HAS. I HAVE SEEN CINDY RUN INTO WALLS, BENT OVER WITH PAIN. IT'S HARD FOR HER TO GET HER BALANCE ON THE SIDE OF HER BED JUST TO GET UP TO GO THE BATH ROOM, IT IS SURE MISERY. SHE MOANS, TRYING HARD TO BE BRAVE. MY LIFE HAS NOT BEEN EASY, WATCHING MY DAUGHTER GO THRU THIS HORRID DISEASE. THE DR. DOESN'T KNOW THE PAIN SHE IS IN, UNLESS THEY HAVE ARD. SHE HAS BEGGED FOR HELP FROM THEM.. I SEE MY DAUGHTER THROWING UP, HOLDING HER STOMACH, CRYING OUT , PLEASE GOD HELP ME. DENIAL NO MORE, I SEE HER AT HER WORST - BEGGING GOD TO TAKE HER HOME. NO ONE CAN TELL ME SHE IS NOT IN A LOT OF PAIN. HOW DARE THOSE DOCTORS SAY ANYTHING TO HER. I HOLD CINDY IN MY ARMS LIKE A BABY, I PAT HER, JUST BEING CLOSE TO HER HELPS. ON THE OTHER HAND, NO MATTER HOW MUCH I TRY TO HELP HER, I FEEL COMPLETELY HELPLESS.. I CAN'T TAKE THAT HORRID PAIN SHE HAS ALL OVER HER BODY AWAY. WE CRY TOGETHER. I RUBBED HER, AND I CRY, HER SAYING TO ME, MOM IT'S STUCK, MAKE IT MOVE. SHE GETS ON HER KNEES AND GOES BACK AND FORTH WITH THE PAIN. IT REALLY BREAKS MY HEART, THIS HORRID ARD HAS GOT TO FIND A CURE. I GO TO MY ROOM AND FALL ON MY KNEES AND PRAY, JUST LET CINDY GET 1 MINUTE PAIN FREE. I CRY A LOT FOR MY DAUGHTER, PLEASE SOME BODY, HELP HER AND THOSE THAT SUFFER FROM THIS ARD. MY DAUGHTER HAS A VERY HARD TIME JUST TO EAT, THEN THE PAIN STARTS IN AGAIN. CINDY HAS PASSED OUT IN THE HALLWAY. SHE HAS TROUBLE DOING ANYTHING AT ALL.. YES SHE IS BRAVE, BUT YOU SEE HER FACE, HEAR THE TONE OF HER VOICE TALKING NASTY TO YOU - NO THAT'S NOT CINDY IT'S THAT PAIN TALKING THRU HER. SHE SAYS FOR HER THERE IS NOTHING TO FORGIVE, SHE IS VERY SICK AND I KNOW THAT. YOU SEE HOW HORRID THAT PAIN GETS. IF PEOPLE JUST TRIED TO UNDERSTAND HOW ARD PAIN AFFECTS EVERY ONE IN THE FAMILY, THEN THEY MIGHT WORK HARDER TO GET SOMETHING TO HELP HER AND OTHERS WITH ARD. SHE GETS TO THE POINT OF WHY GO ON, AND REALIZES SHE HAS AN EARTH LINK, AND SHE'S GOING ON DAILY AND NIGHTLY WITH PAIN. SHE GETS ABOUT 2-3 HOURS SLEEP A NIGHT IF SHE'S LUCKY. I WOULD GIVE MY LIFE FOR MY DAUGHTER CINDY, I ADORE HER SO MUCH. MY LIFE IS IN GOD'S HANDS NOW, SO IS HER.. BE PATIENT WHERE THERE IS PAIN.. PEOPLE PLEASE TRY UNDERSTAND HOW VERY HARD IT IS FOR THOSE WHO SUFFER ARD, COMFORT THEM, HEAR THEY CRY FOR HELP, JUST LISTEN, LET THEM SPEAK OUT. MY DAUGHTER AND I ARE TWO. YES I WILL TAKE CARE OF HER, AS LONG AS GOD SAYS. BLESS MY DAUGHTER AND ME. WE HAVE A LONG ROAD TO TRAVEL. BUT WE WON'T GIVE UP. TO ALL THAT SUFFER FROM ARD BLESS YOU ALL, PLEASE DON'T GIVE UP. MY STORY AS A MOTHER FOR HER DAUGHTER, MARIE FOR CINDY SHURHAN.
THANK
ANN MARIE FRITZ. (72) FLY WITH THE ANGELS
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